Section R398-2-5 - Information to Parents and Primary Care Providers(1) Institutions or birth attendants shall provide information about newborn hearing screening to the infant's parents and primary care providers. This shall include: (a) information, available to parents at the time of birth, explaining the purpose of newborn hearing screening, the procedures used for screening, and outlining the benefits of newborn hearing screening;(b) confirmation of whether each live birth was screened before discharge from the institution;(c) disclosure of the results of the completed newborn hearing screening;(d) recommendations for follow-up screening procedures, if necessary, and information on where to obtain those procedures; and(e) recommendations for cytomegalovirus (CMV) testing, as described in Section 26B-7-105, when appropriate.(2)(a) For infants who require additional procedures to complete the screening process after being discharged from the birthing institution, the institution shall provide parents and the primary care providers with written notice about:(i) the availability and importance of the additional screening procedures; and(ii) when to return to the institution for outpatient rescreening.(b) For infants who do not complete additional hearing screening procedures, the institution shall send a second written notice to the parents and the primary care provider.(3) For infants who fail the complete newborn hearing screening procedure, the institution or the provider who completes the newborn hearing screening procedure shall provide the parents and the primary care provider with written notice about the results of the screening, recommended diagnostic procedures, and where to obtain those procedures.(4)(a) For infants who need additional procedures to complete the screening due to a missed test, inconclusive results, or a failure to pass, and who do not return for the needed newborn hearing screening procedures before ten days of age, or for infants who are lost to follow-up, the institution or birth attendant shall make reasonable efforts to locate the parents and inform them of the need for testing.(b) The Department considers a reasonable effort to be:(i) the institution or birth attendant possesses documentation of at least two attempts to contact the infant's parents; and(ii) at least one attempt to contact the infant's primary care provider.(c) If necessary, the institution or birth attendant must use information available from its own records, adoption agencies, and the infant's primary care provider. The institution or birth attendant may contact the parent by mail, email, telephone, text, primary care provider, or public health worker.(5) To facilitate additional procedures for those who fail to pass the newborn hearing screening, a medical director employed by the Department may issue a standing order for CMV and Auditory Brainstem Response (ABR) testing.Utah Admin. Code R398-2-5
Amended by Utah State Bulletin Number 2019-1, effective 12/3/2018Amended by Utah State Bulletin Number 2022-05, effective 2/14/2022Amended by Utah State Bulletin Number 2024-01, effective 12/19/2023