La. Admin. Code tit. 48 § I-8001
Activities of Daily Living (ADL's)-the following functions or tasks performed either independently or with supervision or assistance:
1. mobility;
2. transferring;
3. walking;
4. grooming;
5. bathing;
6. dressing and undressing;
7. eating;
8. toileting.
Advance Directives-an instruction given to the patient's family (see definition of family) such as a durable power of attorney for health care, a directive pursuant to patient self-determination initiatives, a living will, or an oral directive which either states a person's choices for medical treatment, or in the event the person is unable to make treatment choices, designates who shall make those decisions.
Attending/Primary Physician-a person who is a doctor of medicine or osteopathy fully licensed to practice medicine in the state of Louisiana, who is designated by the patient as the physician responsible for his/her medical care.
Bereavement Services-organized services provided under the supervision of a qualified professional to help the family cope with death related grief and loss issues. This is to be provided for at least one year following the death of the patient.
Branch-a location or site from which a children's respite care center (CRCC) agency provides services within a portion of the total geographic area served by the parent agency. The branch office is part of the parent CRCC agency and is located within a 50-mile radius of the parent agency and shares administration and supervision.
Bureau-the Bureau of Health Services Financing of the Department of Health and Hospitals.
Care Giver-the person whom the patient designates to provide his/her emotional support and/or physical care.
Children's Respite Care Center (CRCC)-an autonomous, centrally administered, pediatric medical respite program providing a continuum of home, outpatient, and homelike inpatient care for children living with life-limiting illnesses and their families. The CRCC employs an interdisciplinary team to assist in providing palliative and supportive care combined with curative treatment to meet the special needs arising out of physical, emotional, spiritual, social, and economic stresses experienced during life-limiting illnesses as well as during dying and bereavement if a cure is not attained.
Contracted Services-services provided to a CRCC provider or its patients by a third party under a legally binding agreement that defines the roles and responsibilities of the CRCC and service provider.
Core Services-medical respite program services, nursing services, physician services, social work services, counseling services, including bereavement counseling, pastoral counseling, and any other counseling services provided to meet the needs of the individual and family, and support services including trained volunteers. These services must be provided by employees of the CRCC, through contracted services and/or volunteers.
CRCC Premises-the physical site where the CRCC maintains staff to perform administrative functions, maintains personnel records, maintains client service records, provides a homelike environment for inpatient respite care, and holds itself out to the public as being a location for receipt of client referrals.
CRCC Services-a coordinated program of a continuum of care to children with life-threatening conditions, their families and caregivers, which allows access to palliative care while continuing with aggressive and curative treatment from the time of admission through bereavement, in the child's home, at the CRCC, and/or in medical facilities.
Department-the Department of Health and Hospitals (DHH).
Discharge-the point at which the patient's active involvement with the CRCC program is ended and the program no longer has active responsibility for the care of the patient.
Do Not Resuscitate Orders-orders written by the patient's physician which stipulate that in the event the patient has a cardiac or respiratory arrest, no cardiopulmonary resuscitation will be initiated or carried out.
Emotional Support-counseling provided to assist the individual and/or family in coping with stress, grief, and loss.
Employee-an individual whom the CRCC pays directly for services performed on an hourly or per visit basis and the CRCC is required to issue a form W-2 on his/her behalf. If a contracting service or another agency pays the individual, and is required to issue a form W-2 on the individual's behalf, or the individual is self-employed, the individual is not considered a CRCC employee. An individual is also considered a CRCC employee if the individual is a volunteer under the jurisdiction of the CRCC.
Family-a group of two or more individuals related by ties of blood, legal status, or affection who consider themselves a family.
Geographic Area-the area around the location of a licensed agency which is within a 50-mile radius of the agency premises. Each CRCC must designate the geographic area in which the agency will provide services.
Governing Body-the person or group of persons that assumes full legal responsibility for determining, implementing and monitoring policies governing the CRCC's total operation. The governing body must designate an individual who is responsible for the day-to-day management of the CRCC program, and must also insure that all services provided are consistent with accepted standards of practice. Written minutes and attendance of governing body meetings are to be maintained.
Home-a person's place of residence.
Informed Consent-a documented process in which information regarding the potential and actual benefits and risks of a given procedure or program of care is exchanged between provider and patient/family.
Inpatient Services-care available for treatment, pain control, symptom management and/or respite purposes that are provided in a participating facility.
Interdisciplinary Team (IDT)-an interdisciplinary group designated by the CRCC, composed of representatives from all the core services. The IDT must include at least a doctor of medicine or osteopathy, a registered nurse, a social worker, and a pastoral or other counselor. The interdisciplinary team is responsible for:
1. participation in the establishment of the plan of care;
2. provision or supervision of CRCC care and services;
3. periodic review and updating of the plan of care for each individual receiving CRCC care; and
4. establishment of policies governing the day-to-day provision of CRCC care and services.
License (CRCC)-a document permitting an organization to provide children's respite care for a specific period of time under the rules and policies set forth by the state of Louisiana.
Life-Limiting Illness-a medical prognosis of limited expected survival because of ailment, illness, disease, or misfortune including, but not limited to:
1. injury;
2. accident;
3. cancer;
4. heart disease; and
5. congenital and chronic obstructive pulmonary disease.
Medical Director-a person who is a doctor of medicine or osteopathy, currently and legally authorized to practice medicine in the state of Louisiana who will:
1. serve as a consultant to the interdisciplinary team;
2. write orders in the event of an emergency in which the child's primary physician cannot be reached; and
3. attend monthly IDT meetings.
Medical Respite Care-the temporary care and supervision of a child living with a life-limiting illness so that the primary caregiver can be relieved of such duties. Such services may be performed in the home of the child or in a facility owned or leased by the children's respite care center.
Medical Social Services-includes:
1. a comprehensive psychosocial assessment;
2. ongoing support for the patient and family; and
3. assistance with coping skills, anticipatory grief, and grief reactions.
Non-Core Services-services provided directly by the CRCC employees, under arrangement, or through referral which include, but are not limited to:
1. home health aide;
2. physical therapy services;
3. occupational therapy services;
4. speech-language pathology services;
5. in-patient care for pain control and symptom management and respite purposes; and
6. medical supplies and appliances, including drugs and biologicals.
Palliative Care-the reduction or abatement of pain or other troubling symptoms by appropriate coordination of the interdisciplinary team required to achieve needed relief of distress.
Pastoral Services-providing the availability of clergy as needed to address the patient's/family's spiritual needs and concerns.
Pediatric-birth through age 20.
Plan of Care (POC)-a written document established and maintained for each individual admitted to a CRCC program. Care provided to an individual must be in accordance with the plan. The plan includes an assessment of the individual's needs and identification of the services including the management of discomfort and symptom relief.
Representative-a person authorized under state law to act on behalf of an individual.
La. Admin. Code tit. 48, § I-8001