Conn. Agencies Regs. § 19a-2a-10

Current through November 7, 2024

Section 19a-2a-10 - Connecticut Tumor Registry data system

(a) Definitions. As used in section 19a-2a-10 of the Regulations of Connecticut State Agencies:

(1) "Clinical laboratory " has the same meaning as provided in section 19a-72 of the Connecticut General Statutes;

(2) "Commissioner " means the Commissioner of Public Health;

(3) " Department " means the Department of Public Health;

(4) " Hospital " has the same meaning as provided in section 19a-72 of the Connecticut General Statutes;

(5) "Health care provider " has the same meaning as provided in section 19a-72 of the Connecticut General Statutes;

(6) "Industry " has the same meaning as provided in section 19a-72 of the Connecticut General Statutes;

(7) "Occupation " has the same meaning as provided in section 19a-72 of the Connecticut General Statutes; and

(8) "Connecticut Tumor Registry data system " means the personal data system maintained and operated by the Department of Public Health that includes a report of every occurrence of a reportable tumor that is diagnosed or treated in the state.

(b) General nature and purpose.

(1) Format. The Connecticut Tumor Registry data system is maintained electronically or in hard copy.

(2) Purpose. The purpose of the Connecticut Tumor Registry data system is to provide data to:

(A) Track cancer incidence and survival in Connecticut;

(B) Evaluate cancer control programs;

(C) Conduct epidemiological studies of cancer in Connecticut; and

(D) Assist the National Cancer Institute.

(3) Official responsible. The Registrar of Tumor Records is located at 410 Capitol Avenue , Hartford, Connecticut, and is the official responsible for the Connecticut Tumor Registry data system. Requests for disclosure or amendment of the records in the system should be directed to this official.

(4) Routine sources. Personal data in the Connecticut Tumor Registry data system is routinely obtained from the following sources :

(A) Hospitals and health care providers;

(B) Death certificates;

(C) Clinical laboratories; and

(D) Reports from other state central cancer registries.

(5) Legal authority. The legal authority for the Connecticut Tumor Registry data system shall include sections 19a-2a, 19a-72 and 4-196 of the Connecticut General Statutes.

(c) Categories of personal data.

The categories of personal data maintained in the Connecticut Tumor

Registry data system include, but are not limited to , the following:

(1) Name;

(2) Social security number;

(3) Date of birth;

(4) Address;

(5) Race;

(6) Ethnicity;

(7) Sex;

(8) Place of birth;

(9) Social and medical risk factors;

(10) Health outcomes;

(11) Industry and occupation;

(12) Certain medical information including, but not limited to, details about the cancer diagnosis, date of diagnosis, histology, grade, extent of disease and prognostic factors; and

(13) Information regarding services provided to the patient, including, but not limited to, the type of treatment provided, dates when the treatments were provided, and the location where the treatments were provided.

(d) Routine use of records, including type of users and purpose of use.

(1) The Connecticut Tumor Registry data system is routinely used by the following individuals or groups :

(A) The staff of the department, as approved by the Commissioner;

(B) The National Cancer Institute; and

(C) Researchers authorized by the department.

(2) The Connecticut Tumor Registry data system is routinely used for the following purposes :

(A) Community-based health planning;

(B) Program evaluation and development;

(C) National and local cancer surveillance;

(D) Epidemiological research; and

(E) Evaluation of patterns of care.

(e) Maintenance and retention of data.

Records of the Connecticut Tumor Registry data system are maintained in accordance with schedules prepared by the Connecticut State Library, Department of Public Records Administration and records retention schedule s, as approved by the Public Records Administrator , as authorized by section 11-8a of the Connecticut General Statutes. Retention schedules shall be maintained on file at the office of the official responsible for the Connecticut Tumor Registry data system and may be examined during normal business hours.

Conn. Agencies Regs. § 19a-2a-10

Adopted effective August 24, 1995; amended 3/8/2023