La. Admin. Code tit. 48 § V-5701

Current through Register Vol. 50, No. 9, September 20, 2024

Section V-5701 - Central Registry

A. The purpose of this rule is to insure prompt referral to the state health officer of all persons residing in Louisiana born with congenital anomalies or spinal cord dysfunctions. These referrals are made in order that all such persons may obtain referrals to appropriate rehabilitative services rendered by existing state agencies, departments, and other organizations and individuals.

B. In the course of its operations each licensed public or private hospital or each licensed physician in the course of his private medical practice shall report to the state health officer any case of the following congenital anomalies:

1. Spina Bifida

2. Hydrocephalus

3. Cleft palate/cleft lip

4. Club foot

5. Severe anomalies of the heart and circulatory system

6. Debilitating deformity

7. Absence of limbs

8. Neurofibromatosis

9. Spinal cord dysfunctions

C. These reports are to be sent to: Central Registry of Congenital Anomalies and Spinal Cord Dysfunctions, Box 60630-Room 607, New Orleans, LA 70160.

D. The report required shall not be filed unless written permission has first been obtained from the person for whom a report is prepared or in the case of a minor, from a parent or guardian of the person for whom a report is prepared, except in those instances of acquired spinal injury, in which instances reporting to the Central Registry is mandatory. The report form entitled "Central Registry of Congenital Anomalies and Spinal Cord Dysfunctions" (see Form A) shall be used for all reports.

E. All information received is kept confidential.

F. Persons admitted to the Central Registry will receive the following services:

1. Information regarding the availability of community services and programs including parent support groups.

2. Information regarding printed materials available through established agencies.

3. Information regarding advances in medical progress and research.

4. Notification of new laws as they become known, affecting the handicapped.

5. Information about federal benefits and programs.

G. A person's name will be removed from the Central Registry upon oral or written request. A person's name will also be removed if information is received that the client has moved from Louisiana or expired.

H. Inquiries. All inquiries should be directed to: Central Registry of Congenital Anomalies and Spinal Cord Dysfunctions, Box 60630-Room 607, New Orleans, Louisiana 70160.

La. Admin. Code tit. 48, § V-5701

Promulgated by the Department of Health and Human Services, Office of Preventive and Public Health Services, LR 13:246 (April 1987).

AUTHORITY NOTE: Promulgated in accordance with R.S. 40:31.2, and R.S. 40:1299.111-120.